Morphea Stories: Shannie’s Hope

In this video from Grace Sherry shared in 2013, we get to meet Shannie Carnline.  Shannie is a 16-year-old with morphea – a form of scleroderma where the connective tissues in the skin become thick and hard.

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Shannie explains how difficult her life has been and how her medications make her tired and nauseous. She then reveals how she hopes to help children and other teenagers who have morphea by establishing a summer camp for them.

Here are ten important scleroderma terms you should know.

Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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