February 14, 2019February 14, 2019
Arrhythmia Linked to Fibrosis in Asymptomatic Patients with Scleroderma, Study Suggests
News
A device designed to continuously record heart rhythm showed that asymptomatic patients with scleroderma have significant arrhythmia, according to a ... Read more
February 12, 2019February 8, 2019
Welcoming Kindness Creates Space for Healing
Columns, Scleroderma and the Ordinary Girl
I had to travel to another part of the country last week. The outing was unplanned, but I’m never ... Read more
February 12, 2019February 12, 2019
Inhibiting PU.1 Protein May Hold Promise for Treating Fibrotic Diseases, Including Systemic Sclerosis
News
Inhibiting the protein PU.1 has potential as a therapy to treat multiple fibrotic diseases, including systemic sclerosis, a new ... Read more
February 11, 2019February 11, 2019
Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide
News
Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about ... Read more
February 7, 2019February 7, 2019
sE-selectin, sIL-2R Levels Are Potential Markers of Localized Scleroderma Activity
News
Serum levels of E-selectin (sE-selectin) and soluble interleukin-2 receptor (sIL-2R) are potential prognostic markers of progression and severity in ... Read more
February 5, 2019February 1, 2019
I’m Bursting the Scleroderma Boredom Bubble
Columns, Scleroderma and the Ordinary Girl
The chronically unwell face plenty of daily challenges, some big and some small. But my latest battle was brought ... Read more
February 5, 2019February 5, 2019
SSc Patients Show Improvements After CD34-selected Stem Cell Transplant, Study Reports
News
Systemic sclerosis (SSc) patients showed reduced skin thickness and improved lung function after a hematopoietic stem cell transplant (HSCT) ... Read more
January 31, 2019January 31, 2019
Clinical Signs of Interstitial Lung Disease in Systemic Sclerosis Patients Identified, Study Reports
News
Certain clinical characteristics that researchers suggest could be potentially useful indicators of interstitial lung disease in systemic sclerosis (SSc) patients ... Read more
January 29, 2019January 28, 2019
Celebrating the Bravery of All Scleroderma Warriors
Columns, Scleroderma and the Ordinary Girl
It’s the middle of summer here in New Zealand. Today the temperature reached 91 degrees Fahrenheit — we Kiwis ... Read more
January 29, 2019January 29, 2019
Rituximab May Alleviate Calcinosis Symptoms in Some Scleroderma Patients, Small Study Shows
News
Treatment with rituximab may help improve the clinical symptoms of calcinosis — the formation of calcium deposits in the ... Read more
January 24, 2019January 24, 2019
Gene Profile May Help Distinguish PAH from ILD in SSc Patients, Study Suggests
News
Among patients with systemic sclerosis (SSc), those who have pulmonary arterial hypertension (PAH) have a distinct pattern ... Read more
January 22, 2019January 18, 2019
Seeking a Second Opinion About My Systemic Scleroderma
Columns, Scleroderma and the Ordinary Girl
I’m going to fess up: sometimes I Google my symptoms. I know it’s not a sensible thing to ... Read more

February 14, 2019February 14, 2019

Arrhythmia Linked to Fibrosis in Asymptomatic Patients with Scleroderma, Study Suggests

News

A device designed to continuously record heart rhythm showed that asymptomatic patients with scleroderma have significant arrhythmia, according to a pilot study. Findings also suggested that arrhythmia — irregular heart ... Read more

February 12, 2019February 8, 2019

Welcoming Kindness Creates Space for Healing

Columns, Scleroderma and the Ordinary Girl

I had to travel to another part of the country last week. The outing was unplanned, but I’m never one to turn down a road trip if the opportunity ... Read more

February 12, 2019February 12, 2019

Inhibiting PU.1 Protein May Hold Promise for Treating Fibrotic Diseases, Including Systemic Sclerosis

News

Inhibiting the protein PU.1 has potential as a therapy to treat multiple fibrotic diseases, including systemic sclerosis, a new study contends. The study reporting that finding, “PU.1 controls fibroblast ... Read more

February 11, 2019February 11, 2019

Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

News

Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about rare diseases and the millions of people — estimates run ... Read more

February 7, 2019February 7, 2019

sE-selectin, sIL-2R Levels Are Potential Markers of Localized Scleroderma Activity

News

Serum levels of E-selectin (sE-selectin) and soluble interleukin-2 receptor (sIL-2R) are potential prognostic markers of progression and severity in localized scleroderma, according to a recent study. The study, “The ... Read more

February 5, 2019February 1, 2019

I’m Bursting the Scleroderma Boredom Bubble

Columns, Scleroderma and the Ordinary Girl

The chronically unwell face plenty of daily challenges, some big and some small. But my latest battle was brought to my attention by binge-watching a TV series. I am ... Read more

February 5, 2019February 5, 2019

SSc Patients Show Improvements After CD34-selected Stem Cell Transplant, Study Reports

News

Systemic sclerosis (SSc) patients showed reduced skin thickness and improved lung function after a hematopoietic stem cell transplant (HSCT) using blood progenitor cells positive for the CD34 marker, a ... Read more

January 31, 2019January 31, 2019

Clinical Signs of Interstitial Lung Disease in Systemic Sclerosis Patients Identified, Study Reports

News

Certain clinical characteristics that researchers suggest could be potentially useful indicators of interstitial lung disease in systemic sclerosis (SSc) patients were recently identified in a study. Findings indicated that longer ... Read more

January 29, 2019January 28, 2019

Celebrating the Bravery of All Scleroderma Warriors

Columns, Scleroderma and the Ordinary Girl

It’s the middle of summer here in New Zealand. Today the temperature reached 91 degrees Fahrenheit — we Kiwis consider that pretty hot for Down Under. During the ... Read more

January 29, 2019January 29, 2019

Rituximab May Alleviate Calcinosis Symptoms in Some Scleroderma Patients, Small Study Shows

News

Treatment with rituximab may help improve the clinical symptoms of calcinosis — the formation of calcium deposits in the skin and muscle — of systemic sclerosis (SSc) patients, a small study suggests. ... Read more

January 24, 2019January 24, 2019

Gene Profile May Help Distinguish PAH from ILD in SSc Patients, Study Suggests

News

Among patients with systemic sclerosis (SSc), those who have pulmonary arterial hypertension (PAH) have a distinct pattern of active and silent genes compared with those who develop interstitial lung ... Read more

January 22, 2019January 18, 2019

Seeking a Second Opinion About My Systemic Scleroderma

Columns, Scleroderma and the Ordinary Girl

I’m going to fess up: sometimes I Google my symptoms. I know it’s not a sensible thing to do, especially when I come across a website that goes ... Read more