May 14, 2021May 14, 2021
Don’t Cry for Me, Scleroderma
Columns, Skintight – a Column by Dinah Chong Watkins
It was one of those “oops!” moments — the express elevator down to your gut when you realize you hit ... Read more
May 13, 2021May 13, 2021
Scleroderma Warriors Project Expands Online Presence
News
The Scleroderma Warriors Project is expanding its online presence with an updated website and online communication platform to support the scleroderma ... Read more
May 11, 2021May 11, 2021
‘Stepping Out to Cure Scleroderma’ Events Run Through June
News
The Scleroderma Foundation invites people to participate in Stepping Out to Cure Scleroderma, a combination of outdoor and virtual fundraising ... Read more
May 10, 2021May 7, 2021
A Tale of Woe From a Human Pin Cushion
Chronically Me – a Column by Amy Baker, Columns
“Don’t worry. This will feel like a pinch.” Sitting in the sterile room with a tourniquet wrapped tightly around my ... Read more
May 7, 2021May 7, 2021
The Mother Lode: Highlighting the Special Moms of Scleroderma Patients
Columns, Skintight – a Column by Dinah Chong Watkins
Along the street lined with neatly planned townhouses, an effervescent spirit zigzagged through the households at midday. Every person under ... Read more
May 6, 2021May 6, 2021
Scientists Identify Scar-forming Mechanisms With Implications for Scleroderma
News
Scientists have identified a mechanism of scar formation in the skin, and demonstrated in mouse models a way to heal ... Read more
May 4, 2021May 4, 2021
Genetic Activity in Skin May Define Stages of Juvenile Localized Scleroderma
News
Distinct profiles of gene activity in skin samples distinguish different disease stages in juvenile localized scleroderma, a study suggests. These ... Read more
April 30, 2021May 7, 2021
Relying on Gravity: Welcome to ‘Skintight,’ a New Column
Columns, Skintight – a Column by Dinah Chong Watkins
(Sung to “Defying Gravity,” with apologies to Stephen Schwartz.) Something has changed within me Some parts are getting tight I’m ... Read more
April 29, 2021April 29, 2021
Computer Algorithm Highly Accurate at Detecting PAH in Scleroderma
News
A computer algorithm called DETECT correctly identified all cases of a potentially life-threatening type of high blood pressure in a ... Read more
April 27, 2021April 27, 2021
Study Differentiates Gene Activity Between Scleroderma, Lung Cancer
News
Gene activity analysis has revealed similarities and differences between scleroderma and related lung cancer, a study reports. Similarities were related ... Read more
April 22, 2021April 22, 2021
Stem Cells Can Augment Fat Grafts in Treating Facial Atrophy
News
Treating facial atrophy in localized scleroderma by grafting stem cells from a patient’s own fat tissue appears to be a ... Read more
April 20, 2021April 20, 2021
Vasohibin-1 Levels May Serve as Biomarker for Lung, Skin Scarring
News
Higher-than-normal blood levels of the vasohibin-1 protein are associated with a greater risk of interstitial lung disease (ILD) and skin ... Read more

May 14, 2021May 14, 2021

Don’t Cry for Me, Scleroderma

Columns, Skintight – a Column by Dinah Chong Watkins

It was one of those “oops!” moments — the express elevator down to your gut when you realize you hit “Reply All” by mistake. My inbox dinged — a lame ... Read more

May 13, 2021May 13, 2021

Scleroderma Warriors Project Expands Online Presence

News

The Scleroderma Warriors Project is expanding its online presence with an updated website and online communication platform to support the scleroderma community. The new platform will create an online community to connect ... Read more

May 11, 2021May 11, 2021

‘Stepping Out to Cure Scleroderma’ Events Run Through June

News

The Scleroderma Foundation invites people to participate in Stepping Out to Cure Scleroderma, a combination of outdoor and virtual fundraising events to support patients and their families, and research into ... Read more

May 10, 2021May 7, 2021

A Tale of Woe From a Human Pin Cushion

Chronically Me – a Column by Amy Baker, Columns

“Don’t worry. This will feel like a pinch.” Sitting in the sterile room with a tourniquet wrapped tightly around my arm, I stared intently at the legion of vials awaiting ... Read more

May 7, 2021May 7, 2021

The Mother Lode: Highlighting the Special Moms of Scleroderma Patients

Columns, Skintight – a Column by Dinah Chong Watkins

Along the street lined with neatly planned townhouses, an effervescent spirit zigzagged through the households at midday. Every person under the age of 8, including me, felt hackles rise up ... Read more

May 6, 2021May 6, 2021

Scientists Identify Scar-forming Mechanisms With Implications for Scleroderma

News

Scientists have identified a mechanism of scar formation in the skin, and demonstrated in mouse models a way to heal wounds to create normal skin instead of scar tissue, a ... Read more

May 4, 2021May 4, 2021

Genetic Activity in Skin May Define Stages of Juvenile Localized Scleroderma

News

Distinct profiles of gene activity in skin samples distinguish different disease stages in juvenile localized scleroderma, a study suggests. These profiles did not necessarily match the patients’ clinical subtype or ... Read more

April 30, 2021May 7, 2021

Relying on Gravity: Welcome to ‘Skintight,’ a New Column

Columns, Skintight – a Column by Dinah Chong Watkins

(Sung to “Defying Gravity,” with apologies to Stephen Schwartz.) Something has changed within me Some parts are getting tight I’m through with tiny buttons Give me sweatpants day or night. ... Read more

April 29, 2021April 29, 2021

Computer Algorithm Highly Accurate at Detecting PAH in Scleroderma

News

A computer algorithm called DETECT correctly identified all cases of a potentially life-threatening type of high blood pressure in a group of people with scleroderma in a recent study. The algorithm ... Read more

April 27, 2021April 27, 2021

Study Differentiates Gene Activity Between Scleroderma, Lung Cancer

News

Gene activity analysis has revealed similarities and differences between scleroderma and related lung cancer, a study reports. Similarities were related to enhanced immunity and weakened regulation of a cell’s life ... Read more

April 22, 2021April 22, 2021

Stem Cells Can Augment Fat Grafts in Treating Facial Atrophy

News

Treating facial atrophy in localized scleroderma by grafting stem cells from a patient’s own fat tissue appears to be a safe and effective alternative to existing methods, according to a ... Read more

April 20, 2021April 20, 2021

Vasohibin-1 Levels May Serve as Biomarker for Lung, Skin Scarring

News

Higher-than-normal blood levels of the vasohibin-1 protein are associated with a greater risk of interstitial lung disease (ILD) and skin scarring among people with scleroderma, a study suggests. The researchers ... Read more