August 14, 2018August 14, 2018
Increased Heart Stiffness May Predict Worse Prognosis in Systemic Sclerosis Patients, Study Suggests
News
Patients with systemic sclerosis (SSc) are more likely to experience stiffness in the right atrium, or upper chamber, of ... Read more
August 9, 2018August 9, 2018
Lupus Overlap in Scleroderma Patients Does Not Seem to Affect Survival, Study Shows
News
Patients with both scleroderma and systemic lupus erythematosus (SLE) are younger at diagnosis, are more often women, and ... Read more
August 7, 2018August 7, 2018
HMGB1 Protein May Drive Blood Vessel, Tissue Damage in Scleroderma, Study Suggests
News
A protein involved in inflammation and tissue regrowth — HMGB1 — may be the main driver of blood vessel ... Read more
August 2, 2018August 2, 2018
Light Therapy Lamp Could be ‘Game-changer’ for Healing Digital Ulcers in SSc Patients
News
Light therapy delivered locally using a lamp that emits infrared, red and ultraviolet light reduced by 83 percent the ... Read more
August 1, 2018July 30, 2018
Get Involved in Medical Research: Take Part, Raise Awareness
Columns, Living The Dream
At the start of this year, I delightedly joined the National Institute for Health Research (NIHR) as a patient ... Read more
July 31, 2018July 27, 2018
Try a Little Kindness — It’s Way More Powerful than Scleroderma
Columns, Scleroderma and the Ordinary Girl
It was Wednesday again, the dreaded supermarket day. The weekly shopping trip is a big ask for me, especially ... Read more
July 31, 2018July 31, 2018
Risk Factors That May Predict Renal Crisis in Scleroderma Patients Identified in Study
News
High protein levels in the urine, poor kidney function, and high blood pressure at the time of systemic sclerosis (SSc) ... Read more
July 26, 2018July 26, 2018
Better Markers Needed for SSc Patients with Rheumatoid Arthritis Overlap Syndrome, Study Says
News
Although serological markers correlate with joint inflammation in patients with systemic sclerosis (SSc), markers that might accurately diagnose systemic ... Read more
July 24, 2018July 24, 2018
Innate Immunity Protein a Potential Therapeutic Target in Scleroderma, Study Suggests
News
A key innate immunity protein called TLR4 is a key driver of organ fibrosis, according to a new study ... Read more
July 19, 2018July 19, 2018
Targeting Key Driver of Fibrosis a Potential Therapeutic Strategy for Scleroderma, Mouse Study Suggests
News
A protein called BAFF, or B-cell activating factor, was found to drive skin and lung fibrosis in systemic ... Read more
July 18, 2018July 16, 2018
Happy 70th Birthday to the NHS: Thank You for Keeping Me Alive
Columns, Living The Dream
On July 5, 2018, over here in the United Kingdom, the National Health Service (NHS) celebrated its 70th year ... Read more
July 17, 2018July 16, 2018
Coping with My Scleroderma Soul Fatigue
Columns, Scleroderma and the Ordinary Girl
Not so many years ago, around the time of my diagnosis, I recall having a major hissy fit. ... Read more

August 14, 2018August 14, 2018

Increased Heart Stiffness May Predict Worse Prognosis in Systemic Sclerosis Patients, Study Suggests

News

Patients with systemic sclerosis (SSc) are more likely to experience stiffness in the right atrium, or upper chamber, of the heart, which is significantly linked to worse functional capacity, ... Read more

August 9, 2018August 9, 2018

Lupus Overlap in Scleroderma Patients Does Not Seem to Affect Survival, Study Shows

News

Patients with both scleroderma and systemic lupus erythematosus (SLE) are younger at diagnosis, are more often women, and have less skin manifestations, but most importantly, show similar survival rates ... Read more

August 7, 2018August 7, 2018

HMGB1 Protein May Drive Blood Vessel, Tissue Damage in Scleroderma, Study Suggests

News

A protein involved in inflammation and tissue regrowth — HMGB1 — may be the main driver of blood vessel damage and tissue fibrosis in scleroderma, suggesting its potential as ... Read more

August 2, 2018August 2, 2018

Light Therapy Lamp Could be ‘Game-changer’ for Healing Digital Ulcers in SSc Patients

News

Light therapy delivered locally using a lamp that emits infrared, red and ultraviolet light reduced by 83 percent the burden of digital ulcers in systemic sclerosis (SSc) patients, a ... Read more

August 1, 2018July 30, 2018

Get Involved in Medical Research: Take Part, Raise Awareness

Columns, Living The Dream

At the start of this year, I delightedly joined the National Institute for Health Research (NIHR) as a patient research ambassador (PRA) for the dermatology and musculoskeletal departments at ... Read more

July 31, 2018July 27, 2018

Try a Little Kindness — It’s Way More Powerful than Scleroderma

Columns, Scleroderma and the Ordinary Girl

It was Wednesday again, the dreaded supermarket day. The weekly shopping trip is a big ask for me, especially because it is winter in New Zealand. The cold air ... Read more

July 31, 2018July 31, 2018

Risk Factors That May Predict Renal Crisis in Scleroderma Patients Identified in Study

News

High protein levels in the urine, poor kidney function, and high blood pressure at the time of systemic sclerosis (SSc) diagnosis are strong predictors for the future development of scleroderma ... Read more

July 26, 2018July 26, 2018

Better Markers Needed for SSc Patients with Rheumatoid Arthritis Overlap Syndrome, Study Says

News

Although serological markers correlate with joint inflammation in patients with systemic sclerosis (SSc), markers that might accurately diagnose systemic sclerosis-rheumatoid arthritis (SSc-RA) overlap syndrome are still lacking, a new ... Read more

July 24, 2018July 24, 2018

Innate Immunity Protein a Potential Therapeutic Target in Scleroderma, Study Suggests

News

A key innate immunity protein called TLR4 is a key driver of organ fibrosis, according to a new study conducted in mice and scleroderma patients. The finding suggests that ... Read more

July 19, 2018July 19, 2018

Targeting Key Driver of Fibrosis a Potential Therapeutic Strategy for Scleroderma, Mouse Study Suggests

News

A protein called BAFF, or B-cell activating factor, was found to drive skin and lung fibrosis in systemic scleroderma (SSc) by altering the balance between two subsets of immune ... Read more

July 18, 2018July 16, 2018

Happy 70th Birthday to the NHS: Thank You for Keeping Me Alive

Columns, Living The Dream

On July 5, 2018, over here in the United Kingdom, the National Health Service (NHS) celebrated its 70th year since its set-up by then-Health Secretary Aneurin “Nye” Bevan. According to ... Read more

July 17, 2018July 16, 2018

Coping with My Scleroderma Soul Fatigue

Columns, Scleroderma and the Ordinary Girl

Not so many years ago, around the time of my diagnosis, I recall having a major hissy fit. I had been invited to a wedding, and I didn’t like ... Read more