Many readers of Scleroderma News have reached out and urged us to do more to bring additional awareness about clinical trials applicable to the scleroderma patient community. In response, we have created a new Clinical Trial Notification Program that helps us match individuals directly to relevant clinical trials based off of their profile information. For participants in our clinical trial notification program, if your profile is a match, we may reach out directly to inform you of a clinical trial that might be specifically relevant to you.

Correspondence between Scleroderma News and our program participants is strictly confidential and subject to our Privacy Policy. We do not share your personal information with third parties except when you have explicitly provided us permission to do so and agree that we can share such information on your behalf. We will not use, sell, or assign your email address for any purpose other than to communicate with you about clinical trial services.

If you are interested in participating in our Clinical Trial Notification Program, please click the button below and complete a short questionnaire. If we identify a trial that your profile is a match for, we will communicate with you via email informing you of the opportunity and will provide information on the sponsor company and trial protocol. With your consent, we will then forward your information to a clinical trial study site in your area for review.

 

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15 comments

  1. Misty Sizemore says:

    Hello I am interested in doing a trial program if eligible. I was diagnosed in 2002 with Diffuse Scleroderma. I also have Raynaud’s and an Interstitial Lung Disease diagnosed in 2013. Currently I do monthly IVIG infusion treatments which began in August of 2014. From August 2014 to July 2016 I was also doing a monthly IV treatment of Cytoxan. Starting in November 2016 I began doing Rituxan IV infusion treatments. I have other conditions that have been brought on by the Scleroderma also.

    • Tim Bossie says:

      We are working on this program now. Have you talked with your doctor about any trials that may be available to you in your area?

  2. Nary Higinbotham says:

    I was diagnosed with Sjogren’s and have pulmonary fibrosis. I also have Raynaud’s and with mild digital ulcers. My Rheumy tested for Scleroderma and said I didn’t have it. Only taking plaquenil 200mg.Also have Gerd issues for which I have been taking prilosec for 9 yrs and sometimes have psuedo bowel obstructions.

  3. Joy Tucker says:

    Just diagnosed two moths ago . Any clinic trials in or near NC (Charlotte) or anything to help with hypopigmentation

  4. Thuy Nguyen says:

    I am interested in any trials for Linear Scleroderma. I’ve been diagnosed with it since age 4 and it has only gotten worst.

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