Staying Alive With Scleroderma – a Column by Amy Gietzen

Learning to Embrace Life Changes With Scleroderma

“I use to …” I found myself saying that more and more as the years went on, despite my best efforts to maintain normalcy more than 20 years after being diagnosed with scleroderma. After that diagnosis in 2001, I began to see myself changing: The things I had once…

Scleroderma Has Caused Me to Question My Self-worth

Ever since I was a child, my parents fostered in me a solid work ethic and a refusal to quit. Whether I was playing a musical instrument or competing in a spelling bee, my parents always taught me to never give up. They instilled in me strength to fight adversity.

Remembering Cat Davis, My Dear Scleroderma Friend

Have you ever met someone and felt like the stars were aligned and everything was right in the universe? That’s what it was like to meet my friend Cat Davis. In 2016, I was in Washington, D.C., for Capitol Hill Day, an advocacy event sponsored by the National Scleroderma Foundation. I…