Presented by Lauren Graham, MD, PhD, Clinical Instructor, Northwestern Department of Dermatology at the Scleroderma Patient Education Conference October 10, 2015 in Chicago. The conference was presented by the Scleroderma Foundation, Greater Chicago Chapter and the Northwestern Scleroderma Program. Topics of the video include: Telangiectasias Dry skin, itching Raynaud’s…
Social Clips
Animated Explanation of Scleroderma
In this video, listen to Andras Fazakas from the Nordic Health Organization, explain the basics of Systemic sclerosis (scleroderma). Learn more about the disease here: https://bit.ly/learnscleroderma…
Lisa Barry’s Story
Watch Lisa Barry’s Story and listen to her family talk about her and her battle with lupus and systemic scleroderma. Learn more about the disease here: https://bit.ly/learnscleroderma…
How Can Scleroderma Affect My Life?
According to National Institute Of Arthritis And Musculoskeletal And Skin Diseases (NIAMS), people with scleroderma may have problems dressing, bathing, or handling basic daily tasks. Scleroderma can affect: The way you look How you feel about yourself How you take care of yourself Family relationships Sexual relations. What…
Last Week’s Top-3 Most Read Posts On Scleroderma
Read the Articles Here: Genkyotex’s Systemic Sclerosis Therapy Granted Orphan Drug Designation Mycophenolate Mofitil Identified As Promising Scleroderma-Related Interstitial Lung Disease Treatment Systemic Sclerosis Patients’ Intestinal Microbiome Found To Be Enriched by Inflammatory Bacteria…
Project Scleroderma: Beneath The Surface
Narrated by Bob Saget, Project Scleroderma: Beneath The Surface is a film that documents the grass-roots mission of a young woman from Philadelphia working to raise awareness for a scarcely known disease that took her mother’s life. In this highly inspirational and hopeful story, follow Christy McCaffrey as she…
Doris Razo’s Story
Meet Doris Razo in “a short candid video of her personal experience with the diagnosis and progression of scleroderma.” Learn more about the disease here: https://bit.ly/learnscleroderma…
Scleroderma: Connect with Others
You are not alone! Scleroderma Foundation offers chapters and support groups all across the U.S. Find a chapter near you here: https://bit.ly/1X4qwTE Finda Support Group near you here: https://bit.ly/1WXa5xE Learn more about the disease here: https://bit.ly/learnscleroderma…
Coping with Scleroderma
According to the Scleroderma Foundation, while there is no proven cure for scleroderma, much can be done to prevent, minimize or alleviate its effects and symptoms. Scleroderma symptoms vary greatly from individual to individual, but there also are a number of general common-sense measures that can help patients cope with the disease and enhance…
Scleroderma Treatment Options
Watch this “full length interview with Dr. Mark Wener to learn more about what is Scleroderma and what are your treatment options.” Learn more about the disease here: https://bit.ly/learnscleroderma…
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