Meet Amanda who was diagnosed with Scleroderma at age 5 and who shared her story with Scleroderma News. She lived a daily normal life until she has developed an ulcer in 2008. When scleroderma affected her left leg it shrunk it down so having a “tiny” leg was normal for her.
According to National Institute Of Arthritis And Musculoskeletal And Skin Diseases (NIAMS), a rheumatologist (a doctor who treats arthritis and other diseases that cause swelling in the joints) may lead your health care team and refer you to other health experts for problems with: Skin Kidneys Heart Digestion Lungs…
In this video from the Scleroderma Research Foundation in partnership with Christy Selfridge, who lost her mom to scleroderma, and the team at New Pace Productions, watch this short six minute film that shares the struggles of patients living with scleroderma as well as the promise that medical research holds for the…
“In this video from Jessica M, learn how scleroderma can be a very debilitating disease. Every year she loses a little more of her independence.” Learn more about the disease here: http://bit.ly/learnscleroderma…
Queen Latifah’s mother, Rita Owens, thought she was on the show to just thank the doctors who have been helping her battle Scleroderma, but she was also invited on the show so that Queen and family could thank her for her strength and inspiring attitude. Learn more about…
The Scleroderma Book: A Guide for Patients and Families by Maureen D. Mayes Scleroderma Coping Strategies by B. Bianca Podesta* Scleroderma: The Proven Therapy that Can Save Your Life by Henry Scammell Perspectives on Living With Scleroderma by…
According to National Institute Of Arthritis And Musculoskeletal And Skin Diseases (NIAMS), Scleroderma is more common in women than men. Anyone can get it, even children. Most localized types show up before age 40, and are more common in people of European descent than in African Americans. Systemic types…
Let’s help to raise more awareness about Scleroderma. Learn more about the disease here: http://bit.ly/learnscleroderma…
Meet Lori and her story of being diagnosed and living with Scleroderma. Learn more about the disease here: http://bit.ly/learnscleroderma…
Read the Articles Here: Systemic Sclerosis Patients’ Intestinal Microbiome Found To Be Enriched by Inflammatory Bacteria miRagen Therapeutics’ Anti-Fibrosis Drug Candidate Starts Clinical Testing Systemic Sclerosis Case Report Details Degeneration in Woman’s Jaw…
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