Social Clips

In this awareness campaign from the Scleroderma Society of Canada, watch people learn how hard it is to say “Scleroderma” and how it is an even harder disease. Learn more about the disease: http://bit.ly/learnscleroderma…

In this video from ehowhealth, listen to Kayti Brosnan as she talks about Raynaud’s Syndrome. Raynaud’s syndrome is caused when the arteries which supply blood to the skin narrow and cut off the circulation to the fingers, toes, tip of the nose, and tips of the ears. Discover how cold areas and…

Learn more about the different types of scleroderma according to the Johns Hopkins Scleroderma Center. Limited Scleroderma – CREST Syndrome Limited scleroderma means only limited areas of skin are thick; usually just the fingers and/or face. Limited scleroderma is the milder form of scleroderma. It is more common among…

In this video from the Scleroderma Foundation, learn more about Eating Well with Scleroderma presented by Linda Kaminski, MS, RD, CDE This session focuses on the unique nutritional needs of people living with scleroderma, with specific emphasis on preventing nutritional deficiencies, reducing inflammation, managing gastrointestinal challenges, and fighting fatigue through healthy…

Read the Articles Here: LARIAT Clinical Trial Expands to Include Connective Tissue-Associated ILD Systemic Sclerosis Patients with ILD Seen to Have High Levels of Defensins in Lungs Systemic Sclerosis Patients’ Intestinal Microbiome Found To Be Enriched by Inflammatory Bacteria  …

In this video from the Scleroderma Foundation, listen to everything you should know about how scleroderma affects the hands. In this session from the 2015 National Patient Education Conference by Dr. Francesco Boin, learn what’s causing damage and how to take good care of your hands. Learn…

In this video from the Scleroderma Foundation, watch “Understanding the Psychological Effects of Scleroderma” by Ginny Maril, M. Psy. People living with scleroderma know that its effects are not solely physical. This session will look at some of the obvious and not-so-obvious effects that living with scleroderma may have on…

Teresa Nadeau died in 2013 after a long and hard-fought battle with scleroderma. Nevertheless, she left us with her amazing story of strength, told in her own words. Watch the beginning of her story above and the following parts below. Learn more about the…

“Scleroderma VOICE” is published four times a year and features stories about people living with scleroderma. In addition, it also has updated research information, answers to your questions about scleroderma, and much more. See past issues online and learn more about the Scleroderma Foundation Magazine here: http://bit.ly/1N8RNBS Learn more about Scleroderma  here:…

https://www.youtube.com/watch?v=gL7xdfjqrhc “Christy McCaffrey started the ‘Beneath the Surface’ project after she lost her mother to Scleroderma.  In this video you see a sneak peek of her interview with Julie, a fellow scleroderma sufferer.”   Learn more about this project here: http://bit.ly/1SPNRHH Learn more about Scleroderma  here:…