Scleroderma is a chronic, often progressive autoimmune disease that attacks the body’s organs including the skin, lungs, heart, kidneys, esophagus, and gastrointestinal tract. Organ, eye and tissue donation provides lifesaving and healing opportunities to the more than 116,000 people waiting for transplants nationwide. It is a way to give…
Social Clips
Pregnancy Issues in Scleroderma by Dr. Lorinda Chung
In this video by the Scleroderma Foundation, Dr. Lorinda Chung discusses the current knowledge regarding pregnancy issues in scleroderma, including fertility, pregnancy course and maternal outcomes. There is also a discussion about managing scleroderma symptoms during pregnancy. Learn more about scleroderma here: https://bit.ly/learnscleroderma…
Living with Morphea, One Girl’s Story
In this video project by Grace Sherry, learn more about how it is to live with morphea. Learn more about scleroderma here: https://bit.ly/learnscleroderma …
According to the Scleroderma Foundation, scleroderma, or systemic sclerosis, is a chronic connective tissue disease. It is generally classified as an autoimmune disease. The symptoms of scleroderma vary greatly from person to person and not all patients develop all complications. Symptoms of scleroderma may be visible, as is the…
Read the Articles Here: Topical Paste May Prevent Skin Hardening in Scleroderma Patients Systemic Sclerosis Disease Activity Seen to Correlate with Vitamin D Deficiency Scleroderma Patient in Long-Term Remission with TPE Treatment …
About the Scleroderma Foundation
“Find out more about Scleroderma and the  Scleroderma Foundation with Chris Harrison, host of ABC’s ‘The Bachelor’.” Learn more about the Scleroderma Foundation here: https://bit.ly/1XZtxXN Learn more about Scleroderma here: https://bit.ly/learnscleroderma…
In this video by the Scleroderma Foundation, watch how pain is persistent and a difficult problem in scleroderma, affecting function in multiple ways. Dr. Daniel Furst of UCLA presented this workshop to examine the many ways pain arises from our muscles, tendons, joints, internal organs and brain. The treatments…
TBT – “For Hope”, the 1996 Movie about Scleroderma
For Hope is a 1996 made-for-television movie starring Dana Delany and directed by Bob Saget. The movie is based on the true story of Saget’s sister Gay, who passed away from complications from scleroderma. Bob Saget’s intention was to raise awareness of a very difficult and sad disease: scleroderma. Most…
Actress and Scleroderma Research Foundation Board Member Dana Delany speaks out about her “hero” on CNN’s “Sharing the Spotlight: Celebrity Heroes.” Her hero, SRF Chairman Luke Evnin, PhD, is a scleroderma patient and general partner at one of the world’s largest investors in life sciences. Learn more…
Briana Garcia Story – Scleroderma Awareness
Listen to Briana Garcia tell her emotional scleroderma story and discuss her journey through the disease. Learn more about scleroderma here: https://bit.ly/learnscleroderma …
Recent Posts
- Dexamethasone reduces inflammation, scarring in SSc mouse model: Study
- Survival improves for SSc-PAH patients on combination therapy
- Combination drug therapy boosts lung, skin health in SSc patients
- On choosing medicine’s side effects over scleroderma progression
- Telerehabilitation improves hand mobility in scleroderma women
- Molecular pathway ID’d as key driver of scarring in scleroderma
- Limited hand function disrupts daily life for people living with SSc
- Coping with loss is part of living with scleroderma
- CAR T-cell therapy eases SSc symptoms, early trial data show
- Milk-derived particles may offer treatment path for SSc fibrosis