In this video from Scleroderma Colorado, we meet Amy. Amy was diagnosed with diffuse scleroderma in September 2013. Discover 10 important symptoms of scleroderma. For Amy, the first sign of the disease came when her hands started turning blue while driving. At that point, doctors couldn’t figure out…
With scleroderma, connective tissues in the body’s major organs become thickened due to an overproduction of collagen.  Scleroderma most noticeably affects the skin, but it can also affect internal organs leading to pulmonary arterial hypertension, and heart and GI tract diseases. Read about seven common complications of scleroderma here. In…
In this 2013 video from Grace Sherry, we meet 15-year-old Shannie who was diagnosed at a young age with morphea--a localized form of scleroderma which is the most common form of the disease in young adults. Discover 20 facts you should know about pediatric scleroderma. Morphea…
Scleroderma (SSc) is a rare but progressive autoimmune disease that mainly affects women between the ages of 20 and 50, although men and children can also develop the disease. Many patients who have scleroderma also develop pulmonary arterial hypertension (PAH). 1. According to the Scleroderma Foundation, there are an estimated…
In this video from the Scleroderma Foundation, Greater Chicago Chapter, registered dietitian Beth Doerfler answers scleroderma patients’ questions about diet. She shares which foods they should eat and which they should avoid to help manage their symptoms and improve their overall health. Explaining the long-term progression of scleroderma.
This video from Adam Karm titled “The Best Mom in the World” is all about the Packer family. Thirty-three-year-old Stephanie Packer was diagnosed with diffuse scleroderma in 2012 and now, as a result, suffers from pulmonary fibrosis. Find out more about how scleroderma can affect the lungs. Stephanie…
For people living with scleroderma, daily life can be extremely painful. The condition affects every aspect of their lives. To date, there is no cure for scleroderma, only medications and treatments that address some of the symptoms of the disease. Could a topical paste prevent skin hardening in…
In this honest video from Park Triangle Productions shared in 2011, Dawn Rone shares what it’s like to have scleroderma. Meet several scleroderma patients and find out about their journey with the disease. Dawn talks about the brutality of the disease and how much she has changed…
A healthy diet does not cure scleroderma, but nutrition is essential for patients’ overall health. In this video by Home Remedies, get some tips for making at-home remedies that might help with scleroderma. According to the Scleroderma…
McCoy Penland was just four years old when her mother, Tara Penland, noticed she had a sudden lack of energy and was constantly scratching her body. As time went on, her trunk started to harden. At first, doctors thought that McCoy was suffering from eczema and that the…
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