THE COUNTDOWN is ON – 7 DAYS to go until WORLD SCLERODERMA DAY 29th June 2016

THE COUNTDOWN is ON – 7 DAYS to go until WORLD SCLERODERMA DAY 29th June 2016
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This year, 2016, FESCA (Federation of European Scleroderma Associations) have put together the following awareness / information video:

‘Hand in Hand for a Better Future’

 

To watch the video on YouTube, click : https://www.youtube.com/watch?v=wYIU7v50DfU

To find out more about FESCA, visit their website as well as: www.worldsclerodermaday.org

This is our chance, for this one day of the year, to shout from the rooftops about Scleroderma, in the hope for more financial investment in medical research for evidence based medicine which improves the scleroderma patient experience.

I wrote at the start of the June Scleroderma Awareness Month campaign that an educated, empowered patient makes for an easier scleroderma patient experience. I still hold this view, and hope that you do too.

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