Scleroderma: Road Under Construction — Tomisa Starr
Tomisa Starr is from California, the Golden State. In addition to having diffuse systemic sclerosis, she manages multiple chronic conditions: progressive fibroctic interstitial lung disease, pulmonary arterial hypertension, arrhythmias, and gastroesophageal reflux disease. Most of her conditions are invisible. Diagnosed with diffuse scleroderma in the 1990s, Tomisa hopes her column, “Scleroderma: Road Under Construction,” will show readers that it is possible to live a long time with the disease.
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My scleroderma diagnosis journey: What a long, strange trip it’s been
I’m 61 years old and live in a city over 100 miles away from a scleroderma care center. I’ve been diagnosed with the disease several times over the past 30 years, and it took me an equal amount…
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