Scleroderma is an autoimmune disease that causes hardening of the skin. This can result in a loss of mobility, and in some extreme cases, can affect internal organs. Scleroderma.org functions as a sounding board for patients and carers to share their own experiences with the disease. 1. Amanda’s Story Amanda was 39…
If you’re a patient, a family member or a friend who wants to do more to help someone suffering from a chronic illness, spreading awareness is one of the greatest gifts you can give. Awareness can mean big changes, including more money for more resources and research into more effective treatments and diagnostic tests. Awareness…
One of our resident columnists, Nicola Whitehill, took the opportunity during Scleroderma Awareness Month to profile some of the people who live with the disease from around the world. MORE: Find out how you can raise scleroderma awareness here Writing on her own personal blog Raynauds Scleroderma Awareness, Nicola shares a rare…
In this Facebook video from Scleroderma and Raynaud’s UK, Alex talks viewers through her makeup routine and how she covers her telangiectasia which helps boost her confidence. MORE: Heart changes that can occur in scleroderma patients Alex talks about the importance of using sunscreen or moisturizers with built-in…
Trish Rainbow-Noack from New South Wales, Australia, first noticed something was wrong when chunks of skin began peeling off the back of her hands. After visiting her doctor, she was told she had lupus. Other symptoms swiftly followed, including chronic fatigue, the inability to walk far, not being…
The 4th Systemic Sclerosis World Congress, organized by the World Scleroderma Foundation (WSF), will run Feb. 18–20 at the Lisbon Congress Center in Lisbon, Portugal, and Scleroderma News Today will be there to cover and report on the proceedings Experts with…
The 4th Systemic Sclerosis World Congress will take place in Lisbon, Portugal, from 18th to 20th February and Scleroderma News will be covering the whole event. Even though this is a systemic sclerosis (SSc) congress, a lot will be discussed about pulmonary arterial hypertension (PAH), which…
May the New Year bring you strength and hope! Happy Holidays! Read the latest news on Scleroderma:Â http://bit.ly/1OsWxFt…
May the New Year bring you strength and hope! Happy Holidays! Read the latest news on Scleroderma:Â http://bit.ly/1OsWxFt…
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