The National Organization for Rare Disorders (NORD) says it’s “disappointed and dismayed” after the House of Representatives voted 227-205…
Articles by Larry Luxner
Children’s National Health System no longer treats just kids. Its Rare Disease Institute, launched in April 2017, has partnered with…
More therapies are now available for the 30 million or so people with rare diseases in the U.S. than ever…
As Congress begins debate this week to overhaul the U.S. tax code, lawmakers should leave the Orphan Drug Act (ODA)…