Skintight — Dinah Chong Watkins

Every year, some of the finest performing artists donate their time and talents to Cool Comedy, Hot Cuisine (CCHC) in support of research programs for the Scleroderma Research Foundation (SRF). The event has featured appearances by Bill Burr,…

Between dry mouth, gum disease, cavities, and tightening of the mouth, scleroderma can make dental care extra challenging. David M. Leader, DMD, MPH, is an expert on dental health and scleroderma, and a longtime supporter of those…

Joep Welling’s story is among those featured in More Than Scleroderma, an initiative by European pharmaceutical company Boehringer Ingelheim to showcase how various people have adapted to life with the disease. A video of Joep for the project…

Like it or not, in many facets of life, money talks. For scleroderma research and development, the largest portion of funding comes from lawmakers in the U.S. Congress. Since 2016, David Murad has led advocacy efforts and served…

Someone once remarked that scleroderma is the “anti-glamorous” disease because it mainly affects menopausal women. But the condition also affects children, young adults, and men. In this column, we’ll hear from two extraordinary young women who are tackling scleroderma…

Although rheumatologists specializing in scleroderma are rare like the disease, they have something in common: passion. They’re passionate about understanding and managing the disease and compassionate toward those it affects. Dr. Nunzio Bottini is one of the…

When I first met Cyndy Martin, 58, I was impressed with her vitality and energy, but she had been severely affected by the ravages of scleroderma only a few years before. Meghan Newell Davis, 36, was a nutritionist and…

The first National Scleroderma Conference I went to was in Anaheim, California, in 2014. Not only was it one of the best organized major conferences I had ever attended — the number of workshops and amount of information was…

They’re the elusive red diamonds in a sea of white. Rare upon rare, males with scleroderma make up 20% of scleroderma individuals. Their disease can also manifest uniquely among the community: Males frequently have more muscular and…

If I were a vegetable, I’d belong in a 5-pound sack of couch potatoes. When I began my career in China in the 1980s, there were no movies, magazines, TV, or shopping. Working out was the only form of…

It was one of those “oops!” moments — the express elevator down to your gut when you realize you hit “Reply All” by mistake. My inbox dinged — a lame substitute for the “You Got Mail” jingle — and…