The word “mortality” has pingponged around my brain from the moment I was introduced to the word “scleroderma.” I’ve…
Articles by Amy Gietzen
For some scleroderma patients, loss of sleep and fatigue are significant issues. Trying to manage a barrage of…
“I do not want my picture taken while I’m in my wheelchair, please!” These were the first words out of…
Chronic stress can lead to many physical and emotional issues, such as anxiety, high blood pressure, stomach ulcers, and…
Anyone living with scleroderma knows it is a difficult disease to manage. As patients, we are constantly flustered…
My experience with scleroderma has been a mashup of hot and cold emotions, physical highs and lows, and an…
I was diagnosed with scleroderma in 2001. Finding out I was sick changed my whole life, and everyone’s lives…
I would venture to guess that most people wake up every morning feeling refreshed after a good night’s sleep. They…
I sometimes find myself envious of other people. I’ll look at a person walking down the street and think,…
I remember as a child having no fear. I would throw myself headfirst into any and everything, not caring whether…