Once you have been diagnosed with scleroderma you will probably continue seeing your rheumatologist for ongoing treatment. You may also need to see other specialists since scleroderma can affect many different areas of the body.
According to the Mayo Clinic, you’ll need to bring your medical files, details of any medications you’re on and why you’re taking them, details of any family medical history that may be relevant and any recent test results to your initial post-diagnosis appointment.
You’ll also want to have a prepared list of questions that you want answered. These could be about future tests you need to undergo, what your treatment will consist of, how scleroderma progresses, and how to best manage your symptoms. Feel free to take notes throughout your discussion with your doctor.
If possible, try to take someone close to you along for moral support. You will probably feel a bit overwhelmed by the amount of information there is to absorb, so having someone else with you will help keep track of everything you were told.
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