Explaining the Long-Term Progression of Scleroderma

This video from FESCA taken at the fourth Systemic Sclerosis World Congress in Lisbon in 2016 shares two presentations dedicated to the progression of scleroderma and how it affects patients on a long-term basis.

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First up is Dr. Jason Lee whose presentation is aimed at scleroderma patients and what they can expect as their condition progresses. Lee talks about the various scleroderma-related conditions that many patients develop such as Raynaud’s phenomenon, Sjogren’s syndrome, pulmonary hypertension and renal failure.

The second presentation is by patient and scleroderma advocate, Kim Fligelstone, who was diagnosed with the disease 27 years ago at the age of 29. She talks about her own personal journey with scleroderma and some of the complications she’s faced over the years.

MORE: Seven tips to help manage Raynaud’s syndrome over the winter months

Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

5 comments

  1. Rosemary Doolan says:

    I was diagnosed with Scleroderma at age 43, I am now 68. I have had enough and wish that something would happen to end my life! Life is hell for me.

    • Muriel pond says:

      Hi rosemary I was diagnosed with scleroderma at 47 I am now 64 ,I do suffer with colitis and raynards and find it very hard to swallow ,but excise and keep my diet that won’t upset me ,so try to change your life style,if you can try you collagen should improve like mine has ,so go girl give it a go ,swimming is great ,

  2. WENDY BOSCH says:

    I have been sick since foe many years. I am with you Rosemary.. My life the last 4 years has been hell pain so bad I think I am having a baby..I pray to not wake up to… I feel your pain…

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