Explaining the Long-Term Progression of Scleroderma

This video from FESCA taken at the fourth Systemic Sclerosis World Congress in Lisbon in 2016 shares two presentations dedicated to the progression of scleroderma and how it affects patients on a long-term basis.

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First up is Dr. Jason Lee whose presentation is aimed at scleroderma patients and what they can expect as their condition progresses. Lee talks about the various scleroderma-related conditions that many patients develop such as Raynaud’s phenomenon, Sjogren’s syndrome, pulmonary hypertension and renal failure.

The second presentation is by patient and scleroderma advocate, Kim Fligelstone, who was diagnosed with the disease 27 years ago at the age of 29. She talks about her own personal journey with scleroderma and some of the complications she’s faced over the years.

MORE: Seven tips to help you manage Raynaud’s syndrome over the winter months

Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

2 comments

  1. Nancy Rice says:

    I have numerous calcium deposits in my fingers, thumbs, elbows, knees, and ankles! Is there anything I can use to eliminate these painful deposits? Would stem cells help me?? Thank you!!

  2. Anna M. Appleby says:

    Could you please offer a transcript of these and other video presentations. I am unable to completely understand this type of communication, but can read and reread printed information. In addition to SSc, ILD, SLE, fibromyalgia, I have dyslexia and I miss a lot of education and understanding these videos provide. I hope this is a valid comment. Any assistance would be appreciated.

    Thank you for this type face, it is quite easy to read and somewhat similar to Kindle’s dyslexic type face.

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