Scleroderma Stories: Paul’s Lung Transplant
In this moving video from Tom Seawell, Paul Cetani tells the story of how he was diagnosed with idiopathic pulmonary fibrosis (IPF).
Paul was diagnosed with IPF in 2009 and his lungs were so bad doctors said he needed a double lung transplant. However, when they did more tests, he was told that he was not a candidate for the procedure.
Devastated by the news, Paul decided to seek a second opinion and it was during the second round of tests that doctors discovered the reason for his IPF—he also had systemic scleroderma.
Paul’s doctor explains why patients with scleroderma-related pulmonary fibrosis are rarely given the option of having a lung transplant. In Paul’s case, not only had his lungs been affected by scleroderma, but also his esophagus. Paul and his family did their research and finally found a transplant center that would accept him as a patient.
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