13 Scleroderma Foundation Resources to Help You
Â
1. Scleroderma Voice Magazine
Members of the Scleroderma Foundation benefit from a free subscription to the Scleroderma Voice Magazine. This publication is issued four times a year and showcases patients stories, scleroderma research information, and much more.
2. Scleroderma Information PacketÂ
A free comprehensive packet of information from the Scleroderma Foundation featuring everything you want to know about the disease.
3. Products That Benefit
This list will help you to find some products that may assist you in your life with scleroderma
4. My Voice
This page showcases some stories from teens and children who live with scleroderma. Remember, you’re not alone!
5. Discussion Board
A 24/7 on-line support group and discussion community with members and patients from all over the world.
6. Weekly eLetter
The Scleroderma Foundation has an electronic newsletter out every Friday. This way you can stay up-to-date with all the latest updates on scleroderma research, resources, and other news.
7. Buzzworthy Reads
Read the latest Scleroderma Foundation news and related issues.
8. NeedyMeds
Learn more about this way to save on your prescription medications.
9. Help For You and Your Family
Need help with legal and disability advice, insurance, alternative therapies, government agencies?  This page provides all sorts of contacts to get you started.
10. Find a Scleroderma Research Center
Find a Scleroderma Foundation center, approved by the organization’s Medical and Scientific Advisory Board, near you. The board ensures that patients are provided with knowledgeable resources about diagnosis, care, and research at the centers.
11. Other Related Organizations and Helpful Links
Check out other health related organizations you may find helpful.
12. Registries
Find out where data from patients and their family members is collected and analyzed to gather information and learn more about Scleroderma.
13. Recommended ReadingÂ
Read any of these books about scleroderma. All are recommended by the foundation.
Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.