What It’s Like Living With Raynaud’s Phenomenon


Raynaud’s phenomenon is caused by poor blood circulation and primarily affects the hands and feet, although the face can also be affected. Extreme temperature changes can turn fingers and toes blue or white and make it painful and difficult to move and manipulate.

MORE: Six complications of scleroderma that need treatment

As Gary Nunn explains in an article for My Body, My Soul, the condition affects almost two million Australians, many of whom have not been officially diagnosed, as many are too embarrassed to admit anything is wrong.

Raynaud’s is much more common in people with connective tissue diseases. It’s estimated that around 80 percent of people living with scleroderma also have Raynaud’s compared to the general population at just 3 percent to 5 percent (Source: sclero.org). The condition also tends to affect women much more than men.

In some cases, the Raynaud’s is so severe that fingers or toes can become gangrenous and need amputation. For most, the disease is manageable though extremely uncomfortable, particularly during the winter, although the summer months can also present some problems.

Those with Raynaud’s often find it near impossible to get their hands and feet warm and often need to resort to wearing gloves and thick socks long before anyone else. They often need to take medication to counter the aches and pains caused by the condition. Living in colder climates presents many problems for those who suffer from the condition and it often has a dramatic effect on the person’s social life.

MORE: Five tips for managing Raynaud’s through the summer

Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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One comment

  1. Anne McCarthy says:

    I use hand warmers. Small sachets that slip into pockets. Very inexpensive & are invaluable playing golf & tennis. Available at Chemists.

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