In this 2013 video from Grace Sherry, we meet 15-year-old Shannie who was diagnosed at a young age with morphea--a localized form of scleroderma which is the most common form of the disease in young adults.
Morphea tends to affect the skin and Shannie describes it as feeling as though “her skin had been replaced with rubber.” In the film, Shannie talks about her feelings towards the disease, the treatment and medications she takes, and how stressed she gets before her doctor’s appointments.
Shannie wants to set up a camp for fellow young morphea patients, where they can talk freely with people who are going through the same thing.
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