Teenager Shares What It’s Like Living With Morphea

In this 2013 video from Grace Sherry, we meet 15-year-old Shannie who was diagnosed at a young age with morphea--a localized form of scleroderma which is the most common form of the disease in young adults.

Discover 20 facts you should know about pediatric scleroderma. 

Morphea tends to affect the skin and Shannie describes it as feeling as though “her skin had been replaced with rubber.” In the film, Shannie talks about her feelings towards the disease, the treatment and medications she takes, and how stressed she gets before her doctor’s appointments.

Shannie wants to set up a camp for fellow young morphea patients, where they can talk freely with people who are going through the same thing.

Find out about seven common misconceptions about scleroderma.

Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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