Scleroderma Foundation My Voice: Hannah Weber


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Meet Hannah. This 13-year-old found out she had systemic scleroderma and Raynaud’s when she was just 5-years-old.

One problem Hannah and her family faced almost immediately, was the difficulty in finding reliable information about scleroderma, especially regarding juvenile cases.

“Overall, I like to go to the Scleroderma Foundation’s conferences because I get to be around people who have scleroderma, too.”

Find out more about her amazing story here:

Learn more about scleroderma here:

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