Awareness: Advocating for Scleroderma at the European Parliament


Meet Nicola Whitehill. At 24 years of age she was diagnosed with diffuse systemic sclerosis (scleroderma) and Raynaud’s phenomenon.

“My full-time job now is to manage my symptoms to a controllable level. In 2013 I came out of the scleroderma closet to the world by way of the Daily Mail publishing my story with the headline ‘The Real Life Tin Man’ and since then I have devoted all of my spare energy to highlighting the plight of the scleroderma patient.

In 2015, I was delighted to be a UK patient advocate for the FESCA World Scleroderma Day event held at the European Parliament.

I am wholly committed to improving the patient landscape which this diagnosis brings, and I feel very blessed that my symptoms are mild compared to other Ssc patients, whose voices I hope to include also.”

Learn more about Nicola’s story and follow her blog here:

Learn more about scleroderma here:

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