Awareness: Advocating for Scleroderma at the European Parliament
Meet Nicola Whitehill. At 24 years of age she was diagnosed with diffuse systemic sclerosis (scleroderma) and Raynaud’s phenomenon.
“My full-time job now is to manage my symptoms to a controllable level. In 2013 I came out of the scleroderma closet to the world by way of the Daily Mail publishing my story with the headline ‘The Real Life Tin Man’ and since then I have devoted all of my spare energy to highlighting the plight of the scleroderma patient.
In 2015, I was delighted to be a UK patient advocate for the FESCA World Scleroderma Day event held at the European Parliament.
I am wholly committed to improving the patient landscape which this diagnosis brings, and I feel very blessed that my symptoms are mild compared to other Ssc patients, whose voices I hope to include also.”
Learn more about scleroderma here: http://bit.ly/learnscleroderma