The Story Behind World Scleroderma Day’s Date
June 29th is recognized around the world as being World Scleroderma Day. This date is an opportunity for anybody with an interest in scleroderma (systemic sclerosis) to join together as a single, united global voice, to shine the spotlight on this little-understood rare disease.
Due to the present unwelcome reality that is currently the case for the rare disease patient, the patient often becomes the medical expert in their diagnosis and disease management.
