Patient Stories: Meet Carly Bankovich


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Two years ago, a 12-year-old girl named Carly Bankovich was playing basketball when she felt a strange sensation and knew something wasn’t right. She just didn’t know what.

“My hands were not moving like they should have been,” remembers Carly.  “The skin on my arms was hard and my hands were really stiff.”

Just like many scleroderma patients know, dealing and diagnosing scleroderma may not always be easy.  Find out more about Carly Bankovich’s story and her eye-opening experience at the juvenile program at the 2015 National Patient Education Conference.

The Annual National Patient Education Conference gives the opportunity for scleroderma patients, caregivers and families to learn more about this condition and network with other people going through similar situations.

The juvenile program at the conference dedicated to juvenile patients, their siblings and even the children of adult patients.

“Our hope is that more families can experience the power of the conference and the support of others living with scleroderma.”

Read the full the Scleroderma Foundation story here:

Learn more about scleroderma here:


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